Click Here Dr. Wong’s Video on Bleeding Disorder Myth Busters
What are the most common bleeding disorders in the U.S.?
Hemophilia may be the first condition that comes to mind, but the most common bleeding disorder is actually Von Willebrand disease. Unlike hemophilia, which primarily affects males due to the way it is inherited, von Willebrand disease can affect both men and women. Additionally, von Willebrand disease can develop later in life, meaning some individuals may not experience symptoms until adulthood.
Hemophilia, on the other hand, is usually an inherited disorder passed through families, meaning individuals are born with it.
One symptom people shouldn’t ignore?
Persistent bleeding that doesn’t stop despite applying pressure for at least 30 minutes.
People with known bleeding disorders may experience more significant bleeding after an injury. It is especially important for those with bleeding disorders to seek emergency care if they experience head trauma, sustain a serious injury, develop large bruising, or have severe pain.
Bleeding disorder = easy bruising? True or false?
False. Many people notice bruises on their body without recalling a specific injury, which is common. When evaluating a bleeding disorder, physicians use tools such as the Bleeding Assessment Tool (BAT), which considers factors like frequent nosebleeds, excessive skin bleeding, oral bleeding, blood in stools, or prolonged bleeding after surgeries.
Can a bleeding disorder be cured?
Generally, no. However, modern treatment options allow for effective management, reducing the risk of severe bleeding episodes. A bleeding disorder is not a life-limiting condition, and with proper care, individuals can live full and healthy lives.
Can you donate blood if you have a bleeding disorder?
No, people with bleeding disorders cannot donate blood. This is not because donating is dangerous to them or that their blood is harmful to others, but rather because maintaining their own blood supply is crucial in case of a bleeding episode.
Are bleeding disorders contagious?
No. Bleeding disorders are not infectious and cannot be transmitted through casual contact or exposure to blood.
What are the safest sports for someone with a bleeding disorder?
Most physical activities are safe, including running, tennis, and pickleball. However, high-contact sports with a high risk of injury should be avoided.
What is the most common misconception about hemophilia?
A common myth is that people with hemophilia will bleed to death from minor cuts or scrapes. This is false. Their bleeding may take longer to stop, but standard interventions like applying direct pressure are effective.
Which vitamin is most important for blood clotting?
Vitamin K. It plays a key role in making blood-clotting proteins functional and effective.
One piece of advice for someone newly diagnosed?
Advancements in treatment have made it possible to effectively manage bleeding disorders. This condition does not have to limit your life—people with bleeding disorders can lead full, active, and healthy lives.
Should people with bleeding disorders avoid surgery?
No. Surgery is not contraindicated for individuals with bleeding disorders. However, it is essential that a hematology specialist is involved to plan appropriate pre- and post-operative management. This may include clotting protein infusions to reduce the risk of excessive bleeding.
At The Cancer & Hematology Centers, we have several specialists who treat and manage bleeding disorders. We also collaborate with the Michigan State University Center for Bleeding and Clotting Disorders to provide care for patients across West Michigan.
What is the biggest advancement in bleeding disorder treatment?
Gene therapy has been developed for hemophilia and can be curative. However, it is currently only available in select medical centers.
Beyond gene therapy, many cutting-edge treatments are now standard in hematology clinics. The primary treatment for bleeding disorders is clotting factor replacement, which restores the missing clotting protein in the blood. Modern therapies offer longer-lasting and more effective options. Additionally, Hemophilia A patients can now benefit from a specialized protein therapy that mimics clotting factors, further improving treatment outcomes.
We’ve made significant progress in managing bleeding disorders, ensuring that patients can lead healthier, more independent lives.